Learn about our resources…

    • Engaging siblings is crucial for family dynamics, especially when one child has a congenital heart defect (CHD). It helps siblings feel included, reduces confusion, and fosters emotional well-being. Here are some resources and suggestions, including tips for parents on how to explain CHD to siblings. (Click here)

    • Families can have the opportunity to submit and share their stories. (Please fill out a form if you would like to participate.)

    • A Guide for Families Navigating the “One Big Beautiful Bill Act” Fallout (Click here)

    • Here you will be able to find downloadable coloring sheets and educational materials. (Link to come)

    • This resource focuses on the emotional, physical, and mental well-being of the entire family. (more to come)

    • Caregivers can often face burnout when balancing medical care with everyday responsibilities. (More to come.)

    • The Symptom & Tool Tracker is an invaluable resource for parents managing a child's CHD treatment and symptoms. (More to come)

    • The Progress Map allows families to visually track their child's treatment milestones and progress. (More to come)

… & Links

  • CHF Homepage

    • Dedicated to funding research for CHD and providing resources and educational materials for families dealing with pediatric heart defects. Their focus is on children, with support and community outreach programs for parents.

  • Conquering CHD homepage

    • Specializes in guiding families of children with congenital heart defects through diagnosis, treatment, and long-term care. They offer toolkits, hospital support programs, and connect families with resources to help manage their child's condition.

  • Little Hearts homepage

    • A support network for families of children with CHD. They provide resources, newsletters, and an opportunity for families to connect with others going through similar experiences.

  • CHD Babies homepage

    • Focuses on congenital heart defect resources for infants and young children. They offer stories, advice and articles to support parents navigating the early stages of their children's heart journey.